digitalraven: (Torch)
Three weeks.

That's how long I'm missing. My memory, not just of the arrest but of pretty much all of the day beforehand, is just gone. If I struggle, I can pick up impressions of being in the hospital for that first week... the rough image of my parents being there, but I have no real idea or context for it. April's said I was looping, with the loop gradually extending, which makes sense. The first concrete memory I have is talking with Dr. Grubb on the Friday.

I remember after that. I remember who came to visit and what we talked about; I remember what I listened to and what books I read and what games I played. I remember the crushing boredom, the food — better, certainly, than it used to be, but something I started to dread after about day 3 — the feeling of trying to get to sleep despite the beeping and snoring and general level of sound. The hope when talking to a doctor that something would happen, the despair when it then didn't.

But that two weeks (and yes, I'm rounding up, I'm allowed) is just as missing as anything else. It's two weeks that I was totally disconnected from my life. The only time I left the ward was to go for x-rays or MRI scans or surgery; the rest of the time I had to be there so the heart monitor would alert people if anything happened. I joked about feeling like a lifer, but the longest anyone else was on the ward was 8 days. I was there for 18.

I'm home now, but that feeling of missing time is still there. I've to "take it easy" for a couple of weeks, not do much beyond gentle exercise for at least 6 more. My flat, looked after by wonderful people, still feels a little bit unreal; packages on the floor that arrived while I was in, things not quite where I would have put them. I'm not in the least complaining! It's wonderful that I have such marvellous friends and chosen family (take a bow, April, Jane, Andrew, Paj, and Carrie-anne) who looked after it and cleaned it probably more than I have in years to give me a sanctuary to come home to.

Even something as simple as 'going outside' remains significant. I don't want to do a lot of things for the first time on my own — I don't know what the hell I'm going to feel going round Lidl for the first time, or wandering down the road to a park, and isn't that just the weirdest thing?

I'm looking forwards to my normal life feeling normal again. But it's probably going to take at least three more weeks until I get there.

I'm glad I have a good therapist.
digitalraven: (Torch)
Some context for future posts:

I had a cardiac arrest as a result of ventricular fibrillation on the 6th of February. This came out of nowhere, all manner of scans and tests have not turned up any reason for it to happen. My heart didn't beat by itself for 18 minutes.

I'm alive thanks to CPR provided by [livejournal.com profile] batswing, the prompt attendance of the Scottish Ambulance Service, and the staff of the ICU, CCU and Ward 103 at the Royal Infirmary of Edinburgh.

I now have an implanted cardioverter defibrillator to make sure it doesn't happen again (couple with the metal plates in my arm I'm truly a modern cyborg), and am recovering at home.

If you don't know CPR, learn CPR. I am only alive right now because of it.
digitalraven: (Default)

I had good news in a phone call on Wednesday.

As a reminder, I got a bit of my heart burned out last May, as that’s preferable to being repeatedly turned off and on again. It’s now been nearly a year since the surgery, and over 18 months since I last had to get restarted. In that time I’ve had no further AF instances.

According to the cardiologist, based on everyone who has had this procedure I now have a 93% chance that I won’t have another instance for 10 years. Odds are, I’m cured. In a couple of months I’ll need to wear an ECG for 24 hours just to be certain, but yeah. With any luck that’s me done with it.

My birthday’s not until Sunday, but I’m taking it as an early present.

digitalraven: (Default)

As I write this, it’s one week since I had heart surgery. One week since I saw a catheter isolating the locations of my pulmonary veins, and inflating a little ballon in the entrance with liquid nitrogen to freeze-burn away the tissue where the veins join the left atrium. I was disappointed. Until the day I was admitted to hospital, I thought they were going to use lasers.

The whole thing is a bit dreamlike in my recollections. The surgery itself was under a local anaesthetic and plenty of sedation; I was conscious but not entirely compos mentis. I remember feeling the alcohol burn of the antiseptic they sloshed over my groin as it pooled around my scrotum. I remember seeing but not feeling the catheter, no bigger than a headphone cable, as they threaded it into my femoral vein. I remember feeling the catheter when it entered my heart for the first time, nerves that’ve never had to register the sensation of “touch” suddenly reporting a very alien sensation. I remember feeling the balloon every time it inflated. Ever have some ice-cream or sorbet that was so cold you could feel it numbing things as it slid down into your stomach? It was like that, only ten times more so. I don’t remember feeling the punch from one atrium to the other; I think that’s a blessing.

My sense of time got a bit fucked up; I was in for about two, two and a half hours, but it felt no more than thirty minutes. I think describing the sensations gives as good an account of the surgery itself as anything else I could write.

Beyond the surgery itself, we spent a lot of last Monday being bored. Danielle came with me to the hospital; I had to be there for 8am, nothing to eat or drink since midnight. She sat with me while people took the usual set of readings, and when we waited. And waited. And waited. I was the third of three, it turns out, and both people before me had longer procedures than anticipated. We played board games for a bit — pass'n'play Terraforming Mars is really rather good on iOS — read, knitted, and generally tried to pass the time until I went in. Danielle even comforted me every time the drinks went around. No coffee all day. I’m pretty sure that’s against the Geneva convention. They could’ve slipped me a couple of Pro-Plus and a sip of water, for fuck’s sakes.

I got the order to change into a gown at 3pm. Because of the location of the entry point to my cardiovascular system, I couldn’t have any dignity. Just a gown and some gauze kecks. When it became apparent that the wait would be more than about five minutes, I stuck some jeans back on. It ended up being two more hours until I was told to get into bed, and the main event kicked off.

I got stitches removed at about nine, and was released into the world at about 10pm, with just a dressing covering the incision (and thus stuck to my short-and-curlies) to show for the whole thing. I’ve spent th past week not doing much; this week I’m still resting but I’m going to be doing a bit more than I was as my fitness returns. Contrary to expectations, however, I’m not being daft. I’m going to listen to my body, and take it easy. Better to take a couple of weeks to get right than to dive into things and be wrecked for six months.

TL;DR: In addition to being restarted five times, I officially have less of a heart than I did a couple of weeks ago. None more goth.